Porphyria Organizations
Take Me to:
National Porphyria Patient Organizations
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Australian Porphyria Association
Website: porphyria-australia.org
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EPP Austria
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EPP-België VZW
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Associação Brasileira de Porfiria
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British Porphyria Association
Website: porphyria.org.uk
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Porphyria Association Denmark
Website: porfyriforeningen.dk
Facebook (private)
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Association Française des Malades Atteints de Porphyries
Website: porphyries-patients.org
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Selbsthilfe EPP e.V
For EPP and XLP
Website: epp-deutschland.de
Berliner Leberring e.V.
For acute hepatic porphyrias
Website: berliner-leberring.de
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Vivi Porfiria
Website: viviporfiria.it
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Sociedad Mexicana Para Porfiria
Website: smporfiria.org.mx
Email: sociedadmexicanaporfiria@gmail.com
Phone: 255 55703316
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EPP Vereniging Nederland
Website: epp.info
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Polska Grupa Chorych na Porfirę
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National Association of Porphyrias Serbia
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Asociación Española de Porfiria
Website: porfiria.org
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South African Porphyria Foundation
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Swedish Porphyria Association/Riksföreningen mot porfyrisjukdomar (RMP)
Website: porfyri.se
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Schweizerische Gessellschaft für Porphyrie
Website: .porphyria.ch
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Porfiria Venezuala
Expert Neworks
Drug Safety Databases
PorphyriaDrugs.com
Available as an app for your phone. Includes the NAPOS and APF databases.
NAPOS Database
Available in English, French, Swedish and Norwegian. Database of the The Norwegian Porphyria Centre (NAPOS).
APF Database
Maintained by the American Porphyria Foundation.