Join the global porphyria community to raise awareness about Porphyria

  1. Turn Purple for Porphyria

On May 18, join us in turning the world purple for porphyria:

  • Wear purple and encourage your friends, coworkers and classmates to join in too!

  • Approach local landmarks about turning purple (sample request letter). Check out this listing for landmarks in your area.

  • Create a #PurpleforPorphyria fundraising campaign for your national porphyria organization.

2. Let others know it’s Global Porphyria DAy

  • Update your social media headers for Global Porphyria Day and your profile picture with a frame

  • Send out a save the date to your networks

  • Create and share your #MyPorphyria story, and encourage others to participate

  • Wear #PurpleforPorphyria and encourage others to get involved!

3. Join the #myPorphyria campaign

  • Share your #MyPorphyria experience using the campaign graphics using the hashtag #MyPorphyria and tagging @GlobalPorphyria

  • Share campaign videos

Thank you to our sponsors

Platinum

Silver