gpac Newsletter

Welcome to the GPAC Newsletter Hub, your go-to space for global porphyria updates, stories and opportunities to connect with our community.

The GPAC Newsletter brings together porphyria advocates, patients, families, healthcare professionals, and partners from every corner of the world. Each edition highlights the latest news, events, and resources that matter most to our global porphyria community — from awareness campaigns and educational materials to inspiring personal stories and research updates.