publications & features

Rarity life magazine #13 - summer 2025

This powerful edition of Rarity Life brings together real stories, experiences and voices from across the rare disease, disability and cancer communities.

This powerful edition features the work of the British Porphyria Association (BPA), led by co-CEOs Liz Gill and Sue Burrell (GPAC President) which shares their personal experiences of living with acute recurrent porphyria and explores the hope brought by gene-silencing treatments.

A heartfelt thank you to Rarity Life for creating such a meaningful platform and to everyone who reads, shares and supports these stories.

Check out the article on pages 28-32 and explore the full magazine below! 👇