OUR COMMUNITY UPDATE

Registration Is Now Open for ICPP 2027 in Istanbul!

Global Porphyria 2026-08-21 Global Porphyria 2026-08-21

Registration Is Now Open for ICPP 2027 in Istanbul!

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For the First Time, People Living with Congenital Erythropoietic Porphyria Come Together in One Global Space

Global Porphyria 2026-08-21 Global Porphyria 2026-08-21

For the First Time, People Living with Congenital Erythropoietic Porphyria Come Together in One Global Space

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A Beacon of Resilience for Porphyria Patients in Venezuela

Global Porphyria 2026-08-13 Global Porphyria 2026-08-13

A Beacon of Resilience for Porphyria Patients in Venezuela

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New Horizons for EPP, Erythropoietic Protoporphyria: Advances in Access to Therapies.

Global Porphyria 2026-07-14 Global Porphyria 2026-07-14

New Horizons for EPP, Erythropoietic Protoporphyria: Advances in Access to Therapies.

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A Global Community United: Celebrating Global Porphyria Day

Global Porphyria 2026-06-19 Global Porphyria 2026-06-19

A Global Community United: Celebrating Global Porphyria Day

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Global Porphyria 2026-05-17 Global Porphyria 2026-05-17

Spotlight on our community: The success of the profile frame

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Launch of NAPOS TRANSLATION: A historic milestone for our community

Global Porphyria 2019-05-28 Global Porphyria 2019-05-28

Launch of NAPOS TRANSLATION: A historic milestone for our community

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The world shines for Porphyria: Global Awareness 2026

Global Porphyria 2019-05-28 Global Porphyria 2019-05-28

The world shines for Porphyria: Global Awareness 2026

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WEAR PURPLE FOR PORPHYRIA

Global Porphyria 2019-05-28 Global Porphyria 2019-05-28

WEAR PURPLE FOR PORPHYRIA

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