GPAC - Global Porphyria Advocacy Coalition 2026-10-20 GPAC - Global Porphyria Advocacy Coalition 2026-10-20

Hope Takes a Historic Step: The ATL-001 Clinical Trial Begins in People Living With CEP

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GPAC - Global Porphyria Advocacy Coalition 2026-10-02 GPAC - Global Porphyria Advocacy Coalition 2026-10-02

A Safe Space Under the Sun: New Evidence on the Wellbeing of Children and Young People with EPP and XLP

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GPAC - Global Porphyria Advocacy Coalition 2026-08-21 GPAC - Global Porphyria Advocacy Coalition 2026-08-21

Registration Is Now Open for ICPP 2027 in Istanbul!

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GPAC - Global Porphyria Advocacy Coalition 2026-08-21 GPAC - Global Porphyria Advocacy Coalition 2026-08-21

For the First Time, People Living with Congenital Erythropoietic Porphyria Come Together in One Global Space

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GPAC - Global Porphyria Advocacy Coalition 2026-08-13 GPAC - Global Porphyria Advocacy Coalition 2026-08-13

A Beacon of Resilience for Porphyria Patients in Venezuela

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GPAC - Global Porphyria Advocacy Coalition 2026-07-14 GPAC - Global Porphyria Advocacy Coalition 2026-07-14

New Horizons for EPP, Erythropoietic Protoporphyria: Advances in Access to Therapies.

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GPAC - Global Porphyria Advocacy Coalition 2026-06-19 GPAC - Global Porphyria Advocacy Coalition 2026-06-19

A Global Community United: Celebrating Global Porphyria Day

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GPAC - Global Porphyria Advocacy Coalition 2026-05-17 GPAC - Global Porphyria Advocacy Coalition 2026-05-17

Spotlight on our community: The success of the profile frame

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GPAC - Global Porphyria Advocacy Coalition 2019-05-28 GPAC - Global Porphyria Advocacy Coalition 2019-05-28

Launch of NAPOS TRANSLATION: A historic milestone for our community

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GPAC - Global Porphyria Advocacy Coalition 2019-05-28 GPAC - Global Porphyria Advocacy Coalition 2019-05-28

The world shines for Porphyria: Global Awareness 2026

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GPAC - Global Porphyria Advocacy Coalition 2019-05-28 GPAC - Global Porphyria Advocacy Coalition 2019-05-28

WEAR PURPLE FOR PORPHYRIA

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