A Global Community United: Celebrating Global Porphyria Day

On May 18th, the international porphyria community stood together to lift voices, drive change, and shine a light on the incredible strength of patients and caregivers worldwide.

We want to share our deepest gratitude with all the patient advocacy organizations whose passion and dedication made this global initiative possible. Our collective voice is stronger when we work together.
Check out our latest video, featuring powerful messages of resilience and hope from our member associations across the globe.

Together, we are making the invisible, visible!