Spotlight on our community: The success of the profile frame

The purple wave reached our profile pictures too! This year, the launch of our official social media frame exceeded all expectations, reaching thousands of people and helping to put a face to our cause worldwide. Seeing so many community members, doctors, and friends unite under one single image has been one of the most exciting parts of this awareness campaign.

Every updated profile was an opportunity to start a conversation and educate others about porphyria. We want to celebrate this unity by sharing this special gallery featuring some of the profiles that helped our message go further than ever. Thank you for lending your image to strengthen our global voice!