Join GPAC’s
Global Chain of Lights campaign!
Help us Turn the World Purple on may 18, 2026!
In honor of Global Porphyria Day 2026, we're excited to launch our 2026 campaign asking for your help to join us and start planning how you’ll take part! Whether you’re an individual, an organization or part of a wider community, every action helps raise awareness and visibility for porphyria worldwide!
Join us and get involved in:
#LightUpForPorphyria
#PurpleForPorphyria
#ShineWithUs
#StandWithUs
#SpeakWithUs
Each year, landmarks around the globe light up purple to raise awareness, engagement and support for the porphyria community. Through this shared effort, we foster greater visibility and meaningful connections for all who are touched by porphyria.
What will you choose to get involved in?
Check out our Global Porphyria Light-Up Campaign Toolkit NOW!
Join the global chain of lights and help us to #LightUpForPorphyria and #ShineWithUs
Will you be wear purple? 💜
Why not organise a #PurpleForPorphyria event at your school/work/local community and #StandWithUs
If you’d like to share your story let us know, we’d love to share your story #SpeakWithUs 🗣️
Contact us admin@gpac-porphyria.org
Help spread awareness online and within your community? 📢 Find a local landmark and see if you can light it up purple – Learn how in our Global Porphyria Light-Up Campaign Toolkit NOW!
Every post, photo and message helps shine a light on porphyria and the people living with it.
Together, let’s make Global Porphyria Day
on 18 May 2026, powerful, visible and unforgettable.
Participation of any scale is welcome, and lighting up even one landmark makes a valuable impact!
Keep checking back: New resources to support Global Porphyria Day activities in 2026 will be added soon!!
🌍💜
Global Porphyria Day, May 18, 2025
CHECK OUT efforts from 2025 to get inspired
In this heartfelt film, members from some of our incredible Porphyria Advocacy Groups share why they dedicate their time, energy and passion to advocating for those affected by porphyria. They work to raise awareness, support families, advocate for better care and create global connections to improve the lives of those affected by porphyria and we couldn't be more grateful!
Thank you to E.P.P. Patient Association Belgium, British Porphyria Association, Associação Brasileira de Porfiria, Canadian Association for Porphyria, Fundación Porfiria Chile, Asociación Latinoamericana para las Porfirias, Association Française des Malades Atteints de Porphyries, EPP Selbsthilfe, Sociedad Mexicana para Porfiria, National Association of Porphyrias Serbia, Schweizerischen Gesellschaft für Porphyrie, Türkiye Porfiri Derneği, United Porphyrias Association 💜
Watch now! 👇
global porphyria day 2025 shareable assets
Turn Purple for Porphyria
On May 18, join us in turning the world purple for porphyria:
Wear purple and encourage your friends, coworkers and classmates to join in too!
Approach local landmarks about turning purple (sample request letter). Check out this listing for landmarks in your area.
Create a #PurpleforPorphyria fundraising campaign for your national porphyria organization.
2. Let others know it’s Global Porphyria DAy
Update your social media headers for Global Porphyria Day and your profile picture with a frame
Send out a save the date to your networks
Create and share your #MyPorphyria story, and encourage others to participate
Wear #PurpleforPorphyria and encourage others to get involved!
3. Join the #myPorphyria campaign
Share your #MyPorphyria experience using the campaign graphics using the hashtag #MyPorphyria and tagging @GlobalPorphyria
Share campaign videos
