Global Porphyria Voices

Real voices. Real stories. Real connection.

Global Porphyria Voices is a brand-new video series from GPAC that brings together people across the porphyria community whether that be patients, caregivers, advocates or researchers for genuine conversations. Each episode features two people sharing their unique stories, perspectives and lived experiences in a relaxed and simply authentic way.

This campaign aims to:

• Amplify the voices of the porphyria community.

• Foster international connection, recognition and understanding.

• Position GPAC as a hub for connection, support and advocacy.

With a vibrant, human-centred approach, Global Porphyria Voices highlights the diversity and strength of our global community while building a space of openness, hope, and togetherness.